Patient Advocacy

Dr. Sohail Masood, Founder of Dysimmune Diseases Foundation, has been a patients’ advocate for more than 25 years. In late nineteen eighties when Dr. Masood got involved with neurologists treating neuromuscular diseases, there were very limited number of drugs available to treat these diseases. Dr. Masood worked closely with neurologists trying Intravenous Immune Globulin (IVIG) to treat these diseases. It opened up a whole new batch of safer and effective drugs previously unavailable to patients. Since IVIG was not initially approved for these diseases, Dr. Masood worked very hard and won the rights of the neuromuscular and dermatological patients to receive their IVIG treatments. Over the last 25 years he was instrumental in changing the medical guidelines and insurance policies of Blue Cross, Blue Shield, Medicare and Medicaid, to name a few, when it came to these diseases and the use of IVIG. He got CIDP, Myasthenia Gravis, and Pemphigus diseases approved for payment from Medicare, Medicaid and various commercial insurance companies for his patients over the years.

As the owner of Crescent Healthcare, Inc. in the 1990s when there was a severe shortage of IVIG, Dr Masood donated IVIG to National Institute of Health (NIH) so that the trials for Stiff Person Syndrome could be completed.

 

The Foundation helps to further the passion of its founder, Dr. Sohail Masood, in helping patients with these diseases. He is also establishing a fund to help the patients meet their financial obligations for copays/deductables, if they qualify.