Our Mission

 

The DYSIMMUNE DISEASES FOUNDATION (DDF) embodies the long-held dream of Dr. Sohail Masood (Pharm D) to develop and implement new, effective treatments for dysimmune diseases. Dysimmune Diseases are also commonly known as autoimmune diseases. Since this is a rather large field, the Foundation will focus on specific aspects of certain diseases.

The medications used in treating the dysimmune diseases can be costly. DDF will work with the prescribing doctors to help improve the delivery of these drugs to patients at discounted prices by meeting some of the copay/deductible needs of the patients who are covered through commercial insurance plans. DDF may also work closely with home infusion companies and manufacturers to offset costs of drugs, if the patient is unable to pay for the drug.

Regarding immediate help for patients, the DDF will expand its current activity of facilitating the administrative and financial aspects of bringing to patients medications currently FDA-approved and proven effective – often they provide cumulatively dramatic benefit. But some of the best drugs can be costly.

One drug often highly effective in treating dysimmune diseases is IVIG (Intravenous Immunoglobulin) used to treat dysimmune neuromuscular diseases, such as CIDP (Chronic Inflammatory Demyelinating Polyneuropathy, or more scientifically Chronic Immune Dysschwannian/Dysneuronal Polyneuropathy), Guillian-Barre Syndrome, Myasthenia Gravis, Multifocal Motor Neuropathy, Relapsin-Remitting Multiple Sclerosis and Stiff Person Syndrome. IVIG is also effective for Dermatomyositis and Polymyositis and can be used in dermatological diseases such as Pemphigus and Pemphygoid, IVIG is also indicated for Primary Immune Deficiency. IVIG has been tried in Down Syndrome and Alzheimer Disease, without definite benefit; further studies are needed.

Sometimes finding the right physician who can help diagnose these diseases better is hard. DDF has created “Centers of Excellence” where the doctors specialized in dysimmune diseases are listed. This list is not a complete list; it will be updated as needed.

The Foundation will expand its ongoing assistance to patients with dysimmune diseases by creating “Centers of Excellence” around physicians nationally known for their treatment of these diseases.

As research funds become available, The DDF is planning to support medical research to provide better understanding of dysimmune diseases, support the development of less expensive versions of some current drugs, and support creation of totally new drugs, for the benefit of all relevant patients.